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MEET ISABELLA GRACE!!
My name is Isabella Grace & this is my website. It has been set up by my family and friends to help raise awareness of my condition and to raise funds for my ongoing treatment.
I am 6 years old and suffer from a rare chromosome disorder.... So rare in fact that it doesn't yet have a name! Not much is known about my disorder at the moment but as a result I was born with two holes in my heart. I am also registered blind and suffer with severe epilepsy.
I can't eat like regular kids and am fed through a tube directly into my tummy. I have very little muscle strength so sitting up unaided has been a struggle for me. I'm yet to master standing or walking but I hope to get there one day.
I'm not talking yet as I like to keep everyone guessing as to what's on my mind but I love to smile and giggle.
Despite all of this I am a very happy little girl with family and friends that love and care for me. They have been fundraising to pay for my treatment since I was a baby and will continue doing so for a long time to come. The main problem is...... I'm expensive!!!
The current aim of all the fundraising is to raise £30,000 to fly me out to Florida in 2013 for life-changing, specialist physiotherapy, along with language and speech therapy. Our dream is that one day I might take my first step or say the word 'Mummy'.
There are lots of Charity Events & projects coming up which you can find out all about on this website.
It would mean the world to me and my family if you could find a way to support us in our charity work.
A BIG thank you,
ISABELLA X X